• By providing clear and adequate information to let patients and their supporters know what's happening and what may happen.
• By building up a realistic picture of the time needed for a full recovery. It is not
• By acknowledging and understanding the extent to which a patient's life may be impacted.
• By reinforcing the "benign" aspects of the diseases and conditions, their nature as rarely inherited conditions, and the life expectancy that treatment can confer.
• By arranging support and treatment for depression.
• By helping patients deal with specific aspects (such as weight gain).
• By letting the patient know about support organizations.
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