With all these potential problems it's a wonder that any of us are sane! Patients have mentioned the following strategies:
• Trying to keep it in perspective—loss of employment may result in a reduced income but it does give more time for hobbies and other interests.
• Increasing their knowledge of the condition and meeting others (for example at a patient support organization).
• Finding alternative activities that are a better match for reduced capacity.
• Recognizing that they may need help and by seeking it.
• Involving the family in the treatment.
"I believe that having a serious illness, and coping with it, is a bit like climbing Mount Everest. I feel it has made me more confident, and I have noticed this phenomenon in others."
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